Many families of patients with autoimmune encephalitis suffer in silence; without understanding the outcome of their family member’s diagnosis. However, two patient families, the “Egger’s and McDow’s” aimed to change this. Both families’ journeys with autoimmune encephalitis lead to the formation one of the world’s largest organizations to support patients and advance research in the diagnosis and treatment of autoimmune encephalitis. Listen and read about their empowering journey that led to the formation of “Autoimmune Encephalitis Alliance”.
Meet Lisa Ann, a patient who was diagnosed with a rare autoimmune skin blistering disease after many misdiagnoses. She shares her story from the first symptoms and frustrations, testing and multiple doctor visits, and how she lives and manages this condition today. Check out this Patient Journey to hear from Lisa Ann and learn what diagnostic tests are available for these rare skin diseases.